Life with Necrobiosis Lipoidica at 19

I am a 19 female I live in Memphis Tn and I have Necrobiosis lipoidica and I have Type 1 diabetes. It is really painful but I still live my day to day life I am in school to be a MA (Medical Assistant) I have a 2 year old little boy and I am married. I live with all this everyday. If you are told you have this, yes it hurts a lot. But you can't let it get you down, you can live with it. I was someone who wore shorts and skirts all the time. But when I first got this I did not. I did not want to show anyone my legs, but now I wear all that again. I am not going to hide who I am because of it.

If anyone has ?'s or would like to talk email me at

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Oct 19, 2015
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Nov 09, 2009
Today my NLD is under control
by: Jean

I've had necrobiosis lipoidica for 12 yrs. I also went though a 2 & 1/2 yr. period dealing with squamous cell cancers on the ulcerated areas. Two years ago I was tested for a gluten allergy, which came back positive.
Today my NLD is under control - no ulcerations, no inflammation, no cancers, no sensitivity to touch, AND a return to a somewhat normal looking skin.
I must do 3 things to achieve this degree of normalcy - stay off gluten, take Oracea,and take Plaquenil (both meds prescribed by my dermatologist at NYU medical center in NYC.
FYI I am not a diabetic.
I hope this info helps you.
Good Luck.

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